Below are links to websites, books, and entertainment that we found helpful both during and after our caregiving experience or in our grieving process.
National Alliance for Caregiving is an organization and website covering it all- caregiving advocacy, research, resources, news.
Family Caregiver Alliance is an organization and website with tip sheets and a "family care navigator" with links to services, programs, and resources for caregivers by state.
Caregiver Profile: Millennials. Want to learn about a typical Millennial caregiver? This is a profile from the 2015 research study about Caregiving in the U.S. from National Alliance for Caregiving and AARP.
Working Daughter is a blog offering support and information to caregivers. It focuses on caring for aging parents but speaks to the challenges of all types of caregivers as it addresses balancing caregiving while managing work and the rest of your life.
The Conversation Project is a website dedicated to helping people talk about their end of life wishes.
Wellthy is a business that was recently founded to help coordinate care and offers legal, financial, housing, medical, in home, and social/mental support services.
Stupid Cancer is an advocacy and support organization that seeks to be a voice for young adult cancer, including caregivers of young adults with cancer, and promotes awareness of age-appropriate resources.
Cancer Care is an organization providing information and resources to those dealing with cancer's challenges; in particular, it has a useful fact sheet for young adult caregivers (linked above).
The Compassionate Friends is an organization focusing on grieving the loss of a child or young person and has a section on sibling grief with links to brochures (linked above). They refer to us siblings as “forgotten mourners.”
Open to Hope is an organization that seeks to give voice to grief and recovery, with resources such as articles and a radio show. They have a whole section about hope after loss of a sibling.
Grief.com provides all you may need to know about grief.
ModernLoss.com is a website offering candid conversations about grief through personal essays and other resources.
Satellite Sisters are a group of five sisters who have a radio show and authored several books celebrating sisterhood, friendship, and connections.
Our blog is meant to be a resource in and of itself. In particular, see the posts Products May Provide Comfort: Buying Guide for Caregivers and Grievers and Using Humor to Cope and How to Help a Friend in Grief for some specific ideas.
Useful books for caregivers, grievers and friends:
Passages in Caregiving: Turning Chaos into Confidence, by Gail Sheehy
When the Focus Is on Care: Palliative Care and Cancer, edited by Kathleen M. Foley and written by Anthony Back, et al., American Cancer Society, 2005
How to Help Your Friend with Cancer, by Colleen Dolan Fullbright, American Cancer Society 2015
AARP Meditations for Caregivers: Practical, Emotional, and Spiritual Support for You and Your Family, by Barry J. Jacobs and Julia L. Mayer
How to Talk So Kids Will Listen & Listen So Kids Will Talk, by Adele Faber and Elaine Mazlish
How to Help Children Through a Parent's Serious Illness, by Kathleen McCue and Ron Bonn
There Is No Good Card for This: What To Say and Do When Life Is Scary, Awful, and Unfair to People You Love, by Kelsey Crowe and Emily McDowell
Passed and Present: Keeping Memories of Loved Ones Alive, by Allison Gilbert
When Breath Becomes Air, by Paul Kalinthi
Being Mortal,by Atul Gawande
Fly a Little Higher, by Laura Sobiech
It's Okay to Laugh: (Crying Is Cool Too), by Nora McInerny Purmort
Books that our sister enjoyed:
Tiny Beautiful Things: Advice on Love and Life from Dear Sugar, by Cheryl Strayed
Lift by Kelly Corrigan
Books that we read to take our mind off things and to make us LAUGH:
Yes Please by Amy Poehler
Bossy Pants by Tina Fey
Is Everyone Hanging Out Without Me? (And Other Concerns) by Mindy Kaling
Why Not Me? by Mindy Kaling
Dear Mr. You by Mary-Louise Parker
And to laugh even more, check out this video. We often wanted to yell like these goats.
Need more lighthearted and/or funny entertainment? We've got you covered with our favorite TV recommendations.
Zach Sobiech wrote "Clouds" before he lost his life to cancer and it has touched millions. Get the tissues ready. (His Mom's book, "Fly a Little Higher," is listed above.)